Cure CMD | Strategic Alliance Partners
Cure CMD was founded in 2008 by three parents whose children have Congenital Muscular Dystrophy. Through close collaboration with researchers, clinicians, families, and generous supporters, we have made a significant impact in the lives of those living with CMD:
- Provided funding for $3+ million in research grants
- Launched two clinical trials
- Established and expanded the Congenital Muscle Disease International Registry (cmdir.org) to 3,000+ affected registrants worldwide
- Host a biennial Scientific & Family Conference with hundreds of stakeholders in attendance
- Created 300+ hours of videos content to educate and advocate
- Prioritized the voice of the affected individual, growing our community by 300% in the last three years
Latest from Cure CMD
NeuroVoices: Rachel Alvarez on Identifying Key Treatment Needs for Congenital Muscular Dystrophies
February 1st 2023The executive direct of Cure CMD discussed the state of care for patients with congenital muscular dystrophies, the need for new treatments, and the patience with gene therapies.
Mission Behind Cure CMD’s Research Roundtable, Efforts Around CMDs: Rachel Alvarez
January 28th 2023The executive director of Cure CMD discussed efforts being done to bring the stakeholder community together and improve the care for patients with congenital muscular dystrophies. [WATCH TIME: 4 minutes]
