Videos
M. Scott Perry, MD: Clinical Experience With Fenfluramine in Dravet Syndrome
April 26th 2020The co-director of the Jane and John Justin Neurosciences Center at Cook Children’s Hospital discussed his experience with Zogenix’s investigational Dravet syndrome treatment in clinical trials and in the Expanded Access Program.
M. Scott Perry, MD: Real-World Fenfluramine Data in Dravet Syndrome
April 25th 2020The co-director of the Jane and John Justin Neurosciences Center at Cook Children’s Hospital discussed the real-world data collected from the Expanded Access Program for fenfluramine (Fintepla; Zogenix) in patients with Dravet syndrome.
Robert E. Shapiro, MD, PhD: Takeaways From Migraine Telemedicine
April 23rd 2020The professor of neurology at the University of Vermont Larner College of Medicine detailed what lessons and highlights he’s learned from shifting his migraine care to a telemedicine-based model during the COVID-19 pandemic.
Robert E. Shapiro, MD, PhD: Migraine Care in the Era of COVID-19
April 17th 2020The professor of neurology at the University of Vermont Larner College of Medicine and founding president of the Alliance for Headache Disorders Advocacy discussed the special article he and colleagues published in the Headache journal on migraine care.
Barry J. Byrne, MD, PhD: The Long-Term Impact of COVID-19 on Telemedicine
April 16th 2020The chief medical advisor for the Muscular Dystrophy Association discussed how the ongoing novel coronavirus pandemic will have a lasting impact on the use of telemedicine in the neuromuscular community­­.
Robert E. Shapiro, MD, PhD: Getting Patients Access to Migraine Care
April 15th 2020The professor of neurology at the University of Vermont Larner College of Medicine and founding president of the Alliance for Headache Disorders Advocacy discussed the need to get patients with migraine access to medications during the COVID-19 pandemic.
Robert E. Shapiro, MD, PhD: Adjusting Migraine Care in a Pandemic
April 14th 2020The professor of neurology at the University of Vermont Larner College of Medicine and founding president of the Alliance for Headache Disorders Advocacy spoke about the impact the COVID-19 pandemic has had on his practice.
Barry J. Byrne, MD, PhD: Muscular Dystrophy Association COVID-19 Recommendations
April 8th 2020The chief medical advisor for the Muscular Dystrophy Association spoke about the process of keeping patients updated on new information and how the MDA has taken steps to ensure the neuromuscular community gets the correct information.
