Episode 29: Developing A Seizure Action Plan

Orrin Devinksy, MD

M. Scott Perry, MD

Tracy Salazar, PhD

Episode 29 of the NeurologyLive Mind Moments podcast is now live! Scroll down to listen or click here to subscribe on your favorite streaming service.

The Mind Moments podcast features exclusive interviews with leaders in the field discussing the latest research and disease management strategies across the breadth of neurology, including epilepsy, multiple sclerosis, Parkinson disease, dementia, sleep disorders, and more.

Episode 29, "Developing A Seizure Action Plan," features a conversation with a group of epilepsy experts, including M. Scott Perry, MD, co-director, Jane and John Justin Neurosciences Center, Cook Children’s Hospital; Orrin Devinksy, MD, director, Comprehensive Epilepsy Center, NYU Langone; and Tracy Salazar, PhD, executive director, LGS Foundation. The discussion centered around this week, the inaugural Seizure Action Plan (SAP) Awareness Week, February 8 to 15, 2021, an initiative to raise awareness about the importance of developing SAPs for patients with epilepsy and their caregivers.

Organized by the SAP Coalition, which is a collaboration of the Dravet Syndrome Foundation, the Lennox-Gastaut Syndrome (LGS) Foundation, and the Tuberous Sclerosis Alliance, the initiative features a social media campaign and new website designed to highlight the need for these plans, especially should an emergency occur.

The SAP Coalition was formed in 2020 by the Dravet Syndrome Foundation, the Lennox-Gastaut Syndrome Foundation, and the Tuberous Sclerosis Alliance to fill an unmet need in the epilepsy community: awareness of what an SAP is. The group is aiming to highlight the importance of SAPs in the health management of those with epilepsy, and offer resources to develop an individualized SAP.

The SAP Coalition website, seizureactionplans.org includes plans, patient stories, and a number of resources for families and health care professionals.

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