Insights From Child Neurology Foundation on Advancing Holistic Epilepsy Care: Jessica Nickrand, PhD; Allyson Eyermann

WATCH TIME: 5 minutes

"Collaboration is central to the Child Neurology Foundation’s mission, and we firmly believe that multidisciplinary perspectives lead to real, holistic solutions for patients, families, and communities."

Patients with epilepsy may sometimes exhibit harmful or disruptive behaviors directed at themselves or others, especially when language or communication impairments are present. At the recently concluded 2024 American Epilepsy Society Annual Meeting, held December 6-10, in Los Angeles, a symposium titled “Harmful and Disruptive Behavior in Epilepsy” provided an in-depth exploration of the challenges posed by these behaviors in patients.¹ The session offered a comprehensive look at both patient and caregiver perspectives while addressing key aspects of assessment, treatment options, and management strategies. Additionally, the symposium highlighted compassionate care and practical solutions, bridging clinical insights with real-world application.

The symposium program was aimed at equipping clinicians with tools to address harmful and disruptive behaviors in epilepsy. Learning objectives included assessing problem behaviors, evaluating both pharmacologic and non-medication treatment options, and managing challenging scenarios with empathy. The session opened with insights from patients and caregivers, followed by expert discussions on behavior assessment, non-medication approaches, and pharmacologic options. Interactive case studies and practical applications were led by a collaborative team in the session, concluding with a panel discussion involving all speakers to reinforce key takeaways and foster audience engagement.

In an interview with NeurologyLive®, Jessica Nickrand, PhD, the director of programs at the Child Neurology Foundation (CNF), and Allyson Eyermann, the deputy director at CNF, reflected on the value of increased collaboration in epilepsy care at AES 2024. They highlighted how partnerships between geneticists, mental health professionals, and neurologists can further improve patient care. Additionally, they discussed strategies for integrating family-centric care and mental health support to reach more patients and caregivers effectively. The duo also shared insights into advancements in disease-modifying therapies that have significantly improved outcomes for children with epilepsy transitioning into adulthood.

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REFERENCES
1. Chadehumbe M, Carroll M, Lin N, et al. Harmful and Disruptive Behavior in Epilepsy. Presented at: AES 2024; December 6-10; Los Angeles, CA. AES-CNF Symposium.