Understanding and Developing a Seizure Action Plan

"Every kid is different. What needs action for every kid is different. Understanding for that individual, what is an emergency situation, what is different for their epilepsy and what needs intervention is really important. That’s another thing that seizure action plans bring.”

The inaugural Seizure Action Plan (SAP) Awareness Week, February 8 to 15, 2021, is an initiative to raise awareness about the importance of developing SAPs for patients with epilepsy and their caregivers. Organized by the SAP Coalition, which is a collaboration of the Dravet Syndrome Foundation, the Lennox-Gastaut Syndrome (LGS) Foundation, and the Tuberous Sclerosis Alliance, the initiative features a social media campaign and new website designed to highlight the need for these plans, especially should an emergency occur.

In efforts to continue these ongoing conversations, NeurologyLive hosted a roundtable discussion with multiple notable leaders within the epilepsy community. Scott Perry, MD, co-director, Jane and John Justin Neurosciences Center, Cook Children’s Hospital; Orrin Devinksy, MD, director, Comprehensive Epilepsy Center, NYU Langone; and Tracy Salazar, PhD, executive director, LGS Foundation, all participated in the multi-segment conversation.

In this first segment, the 3 rare epilepsy experts give their perspectives on the importance of SAPs and the benefits physicians can derive from developing their own.