Vice President of Public Policy and Advocacy, Muscular Dystrophy Association (MDA)
Advocacy and Progress in Rare Neuromuscular Diseases From a Policy Standpoint: Paul Melmeyer, MPP
February 29th 2024In honor of Rare Disease Day, the vice president of public policy and advocacy at the Muscular Dystrophy Association shared his perspective of advocacy and policy progress in the realm of rare neuromuscular diseases. [WATCH TIME: 6 minutes]
MDA’s Focus on Better Access for Patients With Neuromuscular Disorders: Paul Melmeyer
January 25th 2023Ahead of the 2023 MDA Conference, which will be held from March 19-22, 2023, in Dallas, Texas, the vice president of public policy and advocacy at the Muscular Dystrophy Association provided an overview of the current state of access and the need for more advocates in neuromuscular disease. [WATCH TIME: 14 minutes]