Building a Dialogue on Life Sustaining Care in ALS
Panelists share approaches for building a dialogue on life sustaining care such as invasive ventilation and discuss the importance of social and cultural factors for patients and families.
Patient Conversations About Clinical Development in ALS: Matthew B. Harms, MD
May 10th 2021The associate professor of neurology at Columbia University and medical consultant and care center director at the Muscular Dystrophy Association spoke to the importance of staying up on the latest developments in ALS and keeping patients in the loop on that information.
The Impact of Big Data on ALS Care: Matthew B. Harms, MD
May 9th 2021The associate professor of neurology at Columbia University and medical consultant and care center director at the Muscular Dystrophy Association discussed the use of larger datasets to improve prognostication and clinical trials in ALS.
The ENDEAR Trial of Nusinersen in Infantile-Onset SMA
Basil Darras, MD reviews data from the ENDEAR trial of nusinersen in infantile SMA and discusses the agent’s safety and efficacy in patients of differing age groups as studied in other trials.
The Evolving Therapeutic Landscape for SMA
Carolina Tesi Rocha, MD examines the recent shift to disease-modifying treatment in SMA, and the panel reviews factors to consider when tailoring therapy to individual patients.
The Importance of ALS Awareness Month: Matthew B. Harms, MD
May 6th 2021The associate professor of neurology at Columbia University and medical consultant and care center director, Muscular Dystrophy Association, discusses the impact that the Ice Bucket Challenge and ALS Awareness Month have had on the ALS treatment landscape.
Multidisciplinary Approach to Palliative Care in ALS
Expert neurologists discuss the importance of a multidisciplinary approach to the management of symptoms for palliative care in amyotrophic lateral sclerosis (ALS).