Managing Spinal Muscular Atrophy in Adult Patients : Episode 14
Transition of Care in Young Adults With Spinal Muscular Atrophy
Medical professionals explore the challenges and considerations associated with patients with spinal muscular atrophy (SMA) transitioning to independent living, emphasizing the importance of maintaining continuity of care and addressing potential adherence issues to ensure optimal disease management.
EP: 1.Clinical Features and Phenotypes of Spinal Muscular Atrophy
EP: 2.Natural History of Spinal Muscular Atrophy
EP: 3.Presentation of Adult Spinal Muscular Atrophy in Clinics
EP: 4.Transitions of Care: Moving Spinal Muscular Atrophy Patients from Pediatric/Adolescent Care to Adult Clinics
EP: 5.Key Players in Transitioning Patients with SMA from Pediatric Care to Adult Health Care
EP: 6.Managing Clinical Stability in Adults Spinal Muscular Atrophy Patients
EP: 7.Treatments Approved for Treatment of Spinal Muscular Atrophy
EP: 8.Factors Guiding Treatment Selection in Adult Spinal Muscular Atrophy
EP: 9.Switching Treatments in Spinal Muscular Atrophy
EP: 10.Determining Treatment Success in Spinal Muscular Atrophy
EP: 11.Counseling Patients About Treatment Outcomes in Spinal Muscular Atrophy
EP: 12.Real-World Data and Stability with Nusinersen in Adult Patients with Spinal Muscular Atrophy
EP: 13.Real-World Data for Risdiplam in Adult Patients with Spinal Muscular Atrophy
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EP: 14.Transition of Care in Young Adults With Spinal Muscular Atrophy
EP: 15.Recommendations for Clinicians Taking Care of Patients with SMA
- When transitioning care from a parent to patients living on their own, what are some important considerations to ensure continuity of care?
- What gaps do you observe in your practice and how do you mitigate them?
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