Opinion

Video

Dravet Syndrome and Caregiver Burdens

Key Takeaways

  • Caregivers manage frequent, severe seizures and complex treatment regimens, impacting their emotional and psychological well-being.
  • Accessing appropriate healthcare resources and support systems poses significant challenges for caregivers.
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Scott Perry, MD, discusses how caregivers of patients with Dravet syndrome face significant challenges and emphasizes the importance of health care providers navigating sensitive conversations with empathy, clear communication, and comprehensive support to address caregivers’ concerns and needs.

Video content above is prompted by the following:

  • What are the challenges associated with caregivers of patients with Dravet syndrome?
    • How do you navigate challenging conversations with caregivers?
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